Apologies for the lack of posting over the last couple of weeks – two contrasting reasons for my silence! In the run up to my second round of chemo on February 3rd I had an amazing week, full of energy, seeing friends, lots of medical appointments (both for me and my mum) and generally feeling great. In comparison the last week has been one of complete inertia and utter exhaustion! Although I had been warned about the cumulative effects of the chemo I really didn’t expect it to happen so much after round 2. It is also particularly cruel after having such a great week to be plunged into a pit of tiredness that seems never-ending.
BUT the fog is lifting and I’m just looking forward to the coming week where I will feel ‘normal’ before round 3 on February 24th, and I’m determined to be more realistic about the tiredness next time round. My oncologist has also given me the “you have an aggressive form of cancer and we are giving you the most aggressive treatment we can so you will get VERY tired” lecture so I realise I have to accept it and just let my body do what it needs to do. On a very positive note my dodgy boob is already responding to the chemo (oncologist said this might not happen until after round 2) but even after my first chemo the blisters have healed and the rash is receding which is fantastic. Am hoping that the internal effects of the chemo on my tumours will be just as impressive 🙂
Once again my friends are proving an endless source of love and support – messages, lifts to appointments, cooking fabulous meals for us, unexpected pressies, we are truly blessed to have such amazing people in our lives and I will never be able to thank them enough for everything they are doing to help Ray and I. One friend – Becci – has made the amazing commitment to run the St Albans 10K in my name for Macmillan Cancer Support on Mothers’ Day of all days when she should be enjoying some family time with her two little boys and hubby. This is an awe-inspiring effort and if you can support it in any way I would be so, so grateful: https://www.justgiving.com/Becci-Cussens1
One thing I have become aware of since my diagnosis in late November is that barely a day goes by without a story about cancer being in the news. From supposed miracle cures, to the latest research, to devastating personal accounts of cancer battles, usually with very sad outcomes. The statistics on cancer are stark, one in three people will get cancer, and one in eight women have breast cancer.
One of the latest stories that has caused much controversy is the campaign to raise awareness of pancreatic cancer by using terminally ill patients who proclaim they wish they had breast cancer/prostate cancer/testicular cancer instead http://www.bbc.co.uk/news/health-26064830. The adverts at first seem shocking but when you read the statistics who could blame someone with a 3% chance of surviving five years, wishing they had a form of the disease with an 85% survival rate? And who wouldn’t rather have a disease with obvious symptoms, rather than one that can be easily misdiagnosed or dismissed as ‘a bug’?
Personally I feel very lucky to have breast cancer – so much is known about it, so much money has been raised to invest in research and develop new treatments, and I am also so lucky that my GP referred me for investigations the first day she saw me. So often the prognosis is poor because of a delay in diagnosis and so if I can get one message across to people it is to push for a referral if you feel something isn’t right, and if you are a GP then PLEASE refer patients on as soon as possible. If you don’t understand or recognise something then refer it on, that’s what the experts are there for. From the day I saw my GP (a Friday at 4pm) it took just 18 days (12 working days) for me to be referred, seen at the specialist until, scanned and biopsied and to get the initial cancer diagnosis. Research shows this is not always the case http://www.bbc.co.uk/news/health-25274287 and my consultant praised my GP’s actions – so often he sees women who have been given 6, 7 or even 8 courses of antibiotics before referral. As patients we are utterly dependent on the medical professionals to act swiftly – I am very definitely one of the lucky ones.
On a brighter note I’m off to get my second wig trimmed this morning. Razberry Ice Gia (yes, it is spelt with a Z!) finally arrived after a month, but was worth the wait (see pic above). Loads of lovely highlights in it so I can be either Cassidy or Gia when going out. As my lovely friend Mags pointed out, Chestnut Cassidy is my 70s porn star name, while Razberry Ice Gia sounds much more like a rapper so my alter egos are a porn star or rap star – what a choice!